Yesterday we submitted our response to the Scottish Government’s consultation on a proposed Long Term Conditions Framework which closes on the 20th July. This response was based on extensive engagement with our members.
In our response, we were unable to categorically answer whether or not we are in favour of the proposed Long Term Conditions Framework given the diversity of our members. Whilst the proposed Framework has the potential to simplify an overly complex and sometimes siloed approach to long term conditions, some members have expressed concern that the proposed approach could dilute vital condition-specific policy and provision.
There are undoubtedly some potential benefits to a more unified approach. In our response, we suggest that the proposed Framework could help to streamline treatment pathways and improve access to health-creating community based services. It could also address challenges regarding access to patient data and improve wider workforce training around the symptoms of long term conditions.
However, our response also reflects the considerable concern that this Framework is being positioned as a way to cut costs. Many important services for people with long term conditions are already underfunded, particularly in the third sector. A unified Long Term Conditions Framework will only be successful in practice if it retains condition-specific interventions, as well as having a clear plan for implementation, clear lines of accountability, and dedicated sustainable resource.
During our engagement with members, we also heard worrying accounts of people with long term conditions experiencing discriminatory treatment when accessing wider health services. In our response, we recommend that any new framework would need to adopt a whole system approach to address missingness in health and intersectional barriers experienced by many people living with long term conditions.
Finally, a central theme shared by our members regarding the proposed Framework was the need to recognise the vital role of the third sector as an equal partner in the provision of services to people with long term conditions. Third sector organisations need sustainable funding, greater access to patient data, and meaningful engagement in decision-making to better support people with long term conditions.
Thank you to those VHS members who engaged with us regarding this consultation and provided important reflections, evidence, and case studies to reinforce our response.
Read our full response: VHS Response Long Term Conditions Framework Consultation July 2025
If you have any questions or reflections about our response, please contact Sarah Latto, our Policy and Public Affairs Lead.
