“A little charity with a big heart and even bigger plans”
At Narcolepsy UK, our objectives are to provide relief and aid to those persons suffering from narcolepsy. Our principal activities to achieve these objectives are:
· The promotion of, and/or assistance in promoting and carrying out: research, surveys and investigations into narcolepsy and its effects.
· Creating the funding strategies that make this work possible.
· Arranging and providing exhibitions, meetings, lectures, classes and training courses.
· Collecting and distributing information via the Narcolepsy UK media portfolio comprising website, Facebook and Twitter, and social media generally.
Our vision is to help provide a world where narcolepsy is understood and people with narcolepsy have the support they need to ensure that their rights are upheld and that they have the same opportunities as others in society.
The Narcolepsy UK Charter
We believe that everyone with a connection to narcolepsy (personal or professional) should recognise and respect the rights of people with narcolepsy as set out in our Charter. This Charter is a written statement of these rights based on responses to an online survey of 302 people with narcolepsy and 149 supporters undertaken by Adelphi Research. The survey was made possible with support from Adelphi Research, Lincoln Medical Limited, The National Lottery Community Fund and UCB Pharma.
By working collectively towards the Charter’s vision, we will achieve our goal of providing the respect, care and support that people living with narcolepsy and their carers deserve and should expect.
You can download and sign up to the charter here.
Helpline
If you would like further assistance, you can reach out to our helpline to:
· Talking about your illness
· Learning the route to benefits advice. We have our own benefits advisor to support you.
· Possible help with housing
· Assistance with education for all ages
· Assistance finding a route to diagnosis
Our phone is not 24/7 but we do call back.
Call or WhatsApp – 0345 450 0394
Alternatively you can email – info@narcolepsy.org.uk
Written by: Liam Sloan
